Видео с ютуба Rare Diseases Database

How DNA Databases Can Help Diagnose Rare Diseases

From Data To Cures: Speeding The Way For Rare Diseases

How Does Data Sharing Improve the Understanding of Rare Diseases?

What You Need to Know About the Rare Disease Cures Accelerator-Data and Analytics Platform

Rare Diseases Aggregated Data Bases to Inform Drug Development Research

Rare Disease Research with All of Us

Webinar | Locus-Specific Patient Databases for Rare Disease: A Computational Approach

Repurposing drugs for rare disease (a LinkAGE webinar)

S4R Webinar: FAIRness of Data in Rare Diseases

Call for patients and members of their families - Rare Diseases Database

Call for public - Rare Diseases Database

Midsummer Nights' Science: Using big data to understand rare diseases (2016)

2022 Rare Disease Week - How Data Can Power Rare Disease Advocacy

NORD's Next Generation of Rare Disease Advocates: Ian Brown

How to Navigate the National Organization for Rare Diseases Database

EJP RD advanced Webinar - Real World Data, Machine Learning & Deep analytics in Rare Diseases

The Role of Integrated Datasets in Addressing Rare Diseases Research Challenges

Accelerating Drug Development for Rare Diseases through Data Sharing and Analysis

The Goal and Success for Renewed European Rare Disease Policy

Sharing Data With RDCA-DAP: Your Questions Answered